ME & Fibro Directory


HEALTH & WELL BEING

This page is regularly updated with upcoming online health summits and includes a directory of empowering resources for recovery, personal development and self care both during and after illness.

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The Chrysalis Effect Recovery Programme
A comprehensive recovery program for those living with M.E., C.F.S., Fibromyalgia and adrenal fatigue. Visit the website to find out more.
Receive Your Complimentary 20 Page Guide Showing The 8 Essentials You Need To Get Your Life Back From M.E., CFS & Fibromyalgia
– Sign up for the free monthly webinar.


Be the Peace – 10 Day Challenge by the Peace Ripples Institute
21 – 30 September — Starting on International Peace Day


Mindvalley Academy
An online academy for all the things regular schooling forget to teach you. We bring you world-class courses from the world’s top personal growth authors and brands to allow you to create remarkable transformations in all areas of your life.

  • We feature knowledge that current industrial age education systems have neglected to focus on.
  • Go beyond just having a good career—lead a life that’s extraordinary in all dimensions of being human.
  • We bring you teachers that help you enhance all dimensions of your being: your mind, body, soul, work and human connections.

The Gupta Programme
DVD home study – CFS, Fibromyalgia and adrenal fatigue recovery programme


Dr Myhills’s book Diagnosis and Treatment of Chronic Fatigue Syndrome
“It’s mitochondria, not hypochondria!” Myhill’s book won a Highly Commended Certificate at the British Medical Association Book Awards.


ACMAC – The Association of Community & Multibed Acupuncture Clinics
ACMAC is formed of qualified and highly experienced practitioners who wish to make acupuncture as accessible as possible to everyone. Multibed clinics are low cost and therefore a course of treatment is more affordable for patients. Find a clinic near you.


Dr. Jill Carnaham – Article on Mast Cell Activation Syndrome
Useful tips and information for M.E. and Fibro patients also managing MCAS symptoms


Ancestry – Genealogy and DNA Testing
There are many paths to finding your family story. Whichever way you choose—tracing your family generations back with a family tree or uncovering your ethnicity with AncestryDNA
For the USA site CLICK HERE
**DNA results are downloadable


Live Wello
Genetic raw data interpretation. Gene variance reports. Create health reports for your practitioner.


Buteyko Breathing Centre
The Buteyko Method is a set of breathing exercises developed by Dr K P Buteyko to develop healthy breathing patterns, which help to maintain the correct ratio of oxygen and carbon dioxide within the bloodstream. According to his research, some 150 diseases are linked to dysfunctional breathing. There is a home study DVD, plus Skype and face to face courses. In addition to helping asthma and respiratory or sinus problems, it can improve quality and depth of sleep, mental focus, reduce fatigue and help with anxiety too.


The Magnesium Advocacy Group
(MAG) was developed in response to a widespread lack of awareness about the prevalence and negative impact of Magnesium deficiency on our health and well-being. Download the FREE informative PDF “The Black Book” featuring articles by Guy E. Abraham, MD, Suzy Cohen, RPh, and Morley Robbins, MBA, CHC.

MAG is committed to restoring Magnesium’s majestic stance in our environment — and our bodies — through innovative programs aimed at awareness, advocacy, and activism. Note** There are many forms of magnesium and taking the right one at the right time of day can make a difference. For example, the citrate form should be avoided. There are important co-factors that need to be taken alongside the magnesium. The Root Cause Protocol can reverse magnesium deficiency which can lead to:

  • Muscle spasms,  chronic pain, and Fibromyalgia
  • High blood pressure, Metabolic Syndrome, and Heart Disease
  • Sleep disturbances, mood imbalances, and Depression
  • Poor concentration, anxiety, and ADHD
  • And much, much more

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Fiona Agombar – Yoga for Energy
Author of Beat Fatigue with Yoga and Endless Energy. DVD instructional version available. Yoga Therapy for Stress, Exhaustion and Chronic Fatigue Syndrome. Fiona has a deep understanding of ME/CFS.
Recorded yoga retreat session for download £2.50


The Yoga Nidra Network
Yoga nidra is a potent meditative resource for healing, insight, and empowerment. Online courses and free Yoga Nidra downloads.


Donna Eden’s YouTube channel
Learn how to manage your pain and energise your body using simply daily techniques


Massaging the Gate Points – video by the Sussex Allergy Clinic
Sometimes when we start new health supplements or alternative medicine treatments, we can experience a period of detox and feeling worse before we feel better. This is called the Herxheimer reaction. Learn how to massage the Gate Points on the body to minimise reactions after health treatments, when detoxing, or for allergic reactions.


The Sway Test – video by Imaginal Health
Learn how to use the Sway Test to energetically test your foods, supplements and beauty products.


The Coca Pulse Test for Food Sensitivities
One of the easiest methods of food sensitivity testing without special training or expensive equipment is the Coca Pulse Test, discovered by prestigous immunologist Dr. Authur Coca. The test provides a free and accesible way to trace a stress response to the foods you consume. Download Dr Coca’s free book.


The Tapping Solution
Learn how to use EFT – Emotional Freedom Technique for your health, wellbeing and more … FREE tapping meditation resources.


Massage by Heather Wibbles
Heather’s YouTube channel. Learn how to use lymphatic drainage massage for self help. Marvellous help for congestion from colds, blocked sinuses, for detox and health maintenance.


Digestive Health Summit 9-17 September 2017.
This event has now ended. Talks are available to purchase


Niki Gratrix
CFS and abundant energy expert. Take the online questionnaire and discover your ACE score. ACE is the abbreviation for adverse childhood events. Groundbreaking research shows that the higher your ACE score, the greater your risk of developing chronic major diseases.



The Parasite Summit

This event has now finished. Talks are available to purchase

Parasite Summit


 The Mental Wellness Summit 2 – SEPT 25 – OCT 2
Click the banner below to register for FREE access to the online talks by world experts.

The Mental Wellness Summit 2
will provide you with the information you need to:

  • Overcome the silence, isolation and fear of your struggle
  • Transcend outdated, prescription-based healthcare systems
  • Find holistic practitioners and natural solutions for your pain
  • Implement expert practices, tools and tips into your daily routine
  • And so much more! Click below

Mental Wellness Summit 2


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Norman Clinical Lab
Norman Clinical Laboratory, Inc. (NCL) provides a means to test individuals through the mail for cobalamin (vitamin B12 ) deficiency. (International shipping offered).  The urinary MMA/creatinine ratio (uMMA) spot test is more accurate than the blood test as it indicates tissue/cellular B12 deficiency.


True Health Labs
TrueHealthLabs.com was created to make lab testing directly available to those who are uninsured, underinsured, whose doctor refuses to order tests, and those who simply want to make their own healthcare choices. Many test kits can be undertaken at home. European patients, please use the link below to access the international tests menu. No GP referal needed. True Health Labs – Tests for patients in Europe


Medichecks
Expert private health checks and blood tests (spot test and full serum). 1200 tests to choose from. Customise your own thyroid panel according to what you need. Kits sent to your home and blood draw taken at your nearest hospital phlebotamy department or other clinic. No GP or health practitioner referal is required. You can order the test yourself and the results are sent to you. ** Look out for discount codes by email or on Facebook every Thursday


Blue Horizon Medicals
Private medical tests. Collect a sample at home, or at a clinic near you or via nurse home visit. The range of tests includes thyroid and adrenal tests. Check for discount codes on website. No GP or health practitioner referal required.


Regenerus Labs
World leading laboratories that deliver the broadest range of functional, nutritional, genetic, autoimmune for diagnostic and research testing services. No GP or practitioner referal required. Includes Lyme tests, DIO2 gene test, comprehensive gut tests often hard to find elsewhere. Allows you the freedom to work with a natural health practitioner or integrative doctor of your choice, if you need the results interpreted and private treatment.


Thyroid UK
Thyroid patients should have the choice to be treated according to their individual needs. Thyroid UK is a world leader in patient care and resources. Check out their useful directory of private medical testing companies. You can arrange Genova Diagnostics private tests via Thyroid UK without a GP or health practitioner referal. (Can use for other hormone panels not just thyroid test panels. For example the Rhythm Plus or salivary cortisol panels). Private Tests


Health Unlocked
The social network for health. Over 500 health communities. A caring place to ask your burning questions.


23andMe
Genetic health and ancestry testing using a home kit. For interpretation of your results afterwards, we suggest using one of the many free or paid online services that offer ‘raw genetic data interpretation’


Mercola article on maximizing vitamin D exposure safely
Find out the precise dates and times that vitamin D can be absorbed naturally from the sun in your town. Particularly useful for Europeans. Use the US Naval Observatory Azimuth table


Baldwins
Herbal suppliers since 1844. Buy raw ingredients or pre-packaged medicines. It’s also a world class store for customers who create their own medicines, soaps, beauty products and candles. Find glass bottles and jars, empty capsules, unbleached empty teabags, moulds, base ingredients and unusual herbs that are hard to come by elsewhere.


 FND Hope
Supportive resources for M.E. & Fibro patients also living with a functional neurological disorder.
Note**UK residents looking for referals; Prof Mark Edwards at St. Georges Hospital, London is the UK FND specialist. Both St.Georges and the National Neurology Hospital, Queen Square, London offer NHS in-patient intensive neuro rehabilitation programmes.


 Queen Square Private Consulting Rooms
Private Neurology consultations for the full range of neurological conditions from MS to movement disorders, functional disorders and migraines. You don’t always need a GP referal, it depends on the consultant. Located near the National Neurology Hospital London.


Upright MRI
Upright MRI scanner service in London, Leeds and Birmingham, UK. Self referals accepted. Useful if unable to lie down or suffer from claustrophobia.
Note**Some NHS hospitals now offer MRI scanners that are open at the sides.


Physiospect Scan
Available in West Sussex UK. The device scans each organ or tissue on a cellular level. Useful for complex conditions and those that evade diagnosis or recovery. Can provide insights into imbalances/disease that could potentially develop in the future.


NOI Group
Neuro Orthopaedic Institute (NOI) Australasia. Useful resources for brain retraining and pain management. Talks held worldwide. The biopsychosocial approach, or the merging of the biology of human pain, stress and performance with the psychological and social environment, is the basis of the NOI educational philosophy. Their vision is to seed ‘healthy notions of self through neuroscience knowledge’ worldwide.

Visit their page on Graded Motor Imagery and learn brain retraining techniques for movement disorders and impaired motor skills, which can be an issue for a minority of CFS and fibro patients with neuro complications.
Download the Recognise app
Protectormeter
The Explain Pain Handbook brings the latest in pain science into an easily accessible book for patients and includes a groundbreaking pain treatment app – the ‘Protectometer’


Standing Up to Pots
Supporting research for postural orthostatic tachycardia syndrome (POTS) and implementing POTS-specific solutions, resources, information, and programs while also increasing awareness about the disorder. A wealth of resources for anyone living with a disability or chronic illness. POTS can also be a secondary or tertiary health condition for those managing ME/CFS, Fibromyalgia and adrenal fatigue.


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BUSINESS, LEARNING & CREATIVITY

CARERS UK Creative Writing & Photography Competition 2017 – Deadline 31 July 2017
This competition has now closed. Watch out for the 2018 contest.


A Course in Business Miracles
Are you an HSE (Highly Sensitive Entrepreneur)? Take the quiz and receive your free report. Classes, courses and mentoring by World HSE expert Heather Dominick.


Praxis Centre for Aesthetic Studies
Online school run by Brainard Carey and designed to build artists careers. Examples of courses include: how to get exhibited at a gallery, applying for funding, patrons and sponsors, tax, selling online and how to write artist statements. Personal feedback on your website, social media, letters and communications, and more…


Conscious Crafties
Handmade craft online marketplace featuring the work and talents of disabled and chronically ill crafters.


Opulent Mobility
A ground-breaking project and collaborative effort to re-imagine mobility, disability and access. See the gallery of wheelchairs, walkers, prosthetic limbs, crutches and other assistive technology custom designed and personalized. Submit your art, make an exhibit.


Mondly
Play your way to learning a new language for FREE using the app.
Swipe and tap your way through 500 bite-size lessons that last just a few minutes (perfect for those with cog-fog). Plus conversational modules and an optional weekly quiz.


Accessible Arts Australia – Accessible Arts promotes and provides opportunities for people with disability to participate in arts and cultural activities either as audience members; through attending galleries, theatres, museums and festivals; or as participants in art, drama, music, dance and multimedia activities; and by developing as professional artists.


Disabled Entrepreneurs UK
UK Hub for disabled entrepreneurs. Download the free business guide.


Disability Grants
Directory and resources on grants and funding for those in the UK living with a disability.


Creative Future – We provide training, mentoring and the chance to publish or exhibit to talented people who lack opportunities due to mental health issues, disability, health, identity or other social circumstance.


Outside In – Providing a platform for UK visual artists who find it difficult to access the art world


Disability Arts Online – Sharing disability arts and culture with the world

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Women with Disabilities Australia
Women with disabilities sharing experiences, to gain strength from one another and to work together on issues that affect them and to influence legislative, policy, and service development.


International Network of Women with Disabilities
Women sharing their knowledge, experience and creating a more just and fair world that acknowledges disability and gender, justice, and human rights


Disabled Womens Network Canada
DAWN Canada’s vision is to end the poverty, isolation, discrimination and violence experienced by women with disabilities


Images: courtesy PixaBay