ME & Fibro Directory


HEALTH & WELL BEING

A directory of empowering resources for exploring a diagnosis, recovery, personal development, and self-care, both during and after an illness.

composing-2391033_1920

The Chrysalis Effect Recovery Programme
A comprehensive recovery program for those living with M.E., C.F.S., Fibromyalgia and adrenal fatigue. Visit the website to find out more.
Receive Your Complimentary 20 Page Guide Showing The 8 Essentials You Need To Get Your Life Back From M.E., CFS & Fibromyalgia
Sign up for the free monthly webinar and discover how others have moved forward with their recovery.


Mindvalley Academy
An online academy for all the things regular schooling forget to teach you. We bring you world-class courses from the world’s top personal growth authors and brands to allow you to create remarkable transformations in all areas of your life.

  • We feature knowledge that current industrial age education systems have neglected to focus on.
  • Go beyond just having a good career—lead a life that’s extraordinary in all dimensions of being human.
  • We bring you teachers that help you enhance all dimensions of your being: your mind, body, soul, work and human connections.

The Gupta Programme
DVD home study – CFS, Fibromyalgia and adrenal fatigue recovery programme


ZORA Well Being
Keep up to date with the latest FREE online webinars on the topics of health, healing, and personal development. Discover new ways to optimize your health. Plus, watch out for discounts on health products, books, and programs.


Jigsaw Health
Jigsaw brand is recommended by practitioners of The Root Cause Protocol. Click the banner to access your $10 discount using the code 10dollars

Jigsaw Health - $10 Off

Nearly 80% of the population is deficient in Magnesium. And we believe the reason is due to lack of education on what Magnesium does and its essential role in the body. So we’ve made it part of our mission to provide Magnesium “edu-tainment” — entertaining educational content.

Since 2005, Jigsaw Health — “The Magnesium People” — has been developing science-based dietary supplements with a focus on Magnesium featuring Sustained Release Technology (w/SRT®), which controls the release of active ingredients so absorption can happen over time.

** Note from webmaster to UK and European residents – Jigsaw Adrenal Cocktail and other Jigsaw products are available here at Amazon UK


energy dots

Our EMF exposure today is extremely high.  You cannot smell, taste or see EMF radiation but you are immersed in it all day every day.  Many people feel immediate effects and many more are affected without realising it.  Low energy, poor sleep, lack of concentration, headaches, a feeling of being unsettled and/or stressed are experienced by a huge percentage of people but very few would link these feelings to their use of technology.

All of our much-loved gadgets are EMF devices.  energydots are EMF protection devices.  They act as transformers.  They harmonise or retune the electromagnetic frequencies to a natural energy which does not affect the body in the same way.   smartDOT is an essential element if you are looking for EMF protection.  Many of us keep our mobile phones on us 24 hours a day. smartDOT has a self-adhesive back so you can stick it to your mobile phone and feel the benefits. Discover the full range from sleep mats to aqua dots


Dr. Myhill’s book Diagnosis and Treatment of Chronic Fatigue Syndrome
“It’s mitochondria, not hypochondria!” Myhill’s book won a Highly Commended Certificate at the British Medical Association Book Awards 2015.
Order from AMAZON UK
International orders and Dr. Myhill’s website HERE
41eyP2tcH9L._SX383_BO1,204,203,200_


ACMAC – The Association of Community & Multibed Acupuncture Clinics
ACMAC is formed of qualified and highly experienced practitioners who wish to make acupuncture as accessible as possible to everyone. Multi-bed clinics are low cost and therefore a course of treatment is more affordable for patients. Find a clinic near you.


Dr. Jill Carnaham – Article on Mast Cell Activation Syndrome
Useful tips and information for M.E. and Fibro patients also managing MCAS symptoms


AncestryDNA – Genetic Testing Ethnicity
Discover your ethnicity estimate via an AncestryDNA saliva test. The downloadable raw data from your AncestryDNA can be uploaded to Live Wello to extract your genetic health data.
For the USA Ancestry site CLICK HERE


Live Wello
Genetic raw data interpretation. Gene variance reports. Option to share health reports with your health practitioner.


Buteyko Breathing Centre
The Buteyko Method is a set of breathing exercises developed by Dr K P Buteyko to develop healthy breathing patterns, which help to maintain the correct ratio of oxygen and carbon dioxide within the bloodstream. According to his research, some 150 diseases are linked to dysfunctional breathing. There is a home study DVD, plus Skype and face to face courses. In addition to helping asthma and respiratory or sinus problems, it can improve the quality and depth of sleep, mental focus, reduce fatigue and help with anxiety too.
Home study: purchase the Buteyko Clinic Method (includes DVD and CD) HERE

41Xr0oqavEL._SX354_BO1,204,203,200_


The Root Cause Protocol

Grounded in cutting edge science, discover how the Root Cause Protocol can help with Chronic Conditions such as Lyme, Hashimoto’s, Rheumatoid Arthritis, Multiple Sclerosis, PCOS, Chronic Fatigue, Fibromyalgia, and Neurodegeneration.

The Root Cause Protocol can reverse magnesium deficiency which can lead to:

  • Muscle spasms,  chronic pain, and Fibromyalgia
  • High blood pressure, Metabolic Syndrome, and Heart Disease
  • Sleep disturbances, mood imbalances, and Depression
  • Poor concentration, anxiety, and ADHD
  • And much, much more

Download your FREE Root Cause Protocol Instruction Manual HERE

relaxation-1967892_640

Fiona Agombar – Yoga for Energy
Author of Beat Fatigue with Yoga and Endless Energy. DVD instructional version available. Yoga Therapy for Stress, Exhaustion and Chronic Fatigue Syndrome. Fiona has a deep understanding of ME/CFS.
Recorded yoga retreat session for download £2.50
Purchase Fiona’s books HERE

51F8kNkVB5L._AC_US218_


The Yoga Nidra Network
Yoga nidra is a potent meditative resource for healing, insight, and empowerment. Online courses and free Yoga Nidra downloads.


Donna Eden’s YouTube channel
Learn how to manage your pain and energise your body using simply daily techniques


Massaging the Gate Points – video by the Sussex Allergy Clinic
Sometimes when we start new health supplements or alternative medicine treatments, we can experience a period of detox and feeling worse before we feel better. This is called the Herxheimer reaction. Learn how to massage the Gate Points on the body to minimise reactions after health treatments, when detoxing, or for allergic reactions.


The Sway Test – video by Imaginal Health
Learn how to use the Sway Test to energetically test your foods, supplements and beauty products.


The Coca Pulse Test for Food Sensitivities
One of the easiest methods of food sensitivity testing without special training or expensive equipment is the Coca Pulse Test, discovered by prestigious immunologist Dr. Authur Coca. The test provides a free and accessible way to trace a stress response to the foods you consume. Download Dr. Coca’s free book.


Learn how to make Solé Water in this instructional video by Dr. Budweiser.
Watch HERE

“Sole is also known as the “mother soup” of all life because the ratio of water to salt concentration in our blood is the same as that of the primal ocean. The crystalline Sole contains all the elements necessary to create life. Our bodies are predominantly made of water and salt and as such makes Sole one of the most fundamental things you can take for good health and wellness. Extremely cheap and effective, Sole is an electrolyte-dense brine that is taken as a supplement every morning.” Dr. Budweiser 


EFT Practitioner Training

Is it time for a new career? Or to grow your existing therapy business? Or are you an EFT Practitioner looking for additional skills? Adding Emotional Freedom Technique to your skill-base can greatly enhance your therapy business, whether you are a counsellor, hypnotherapist, homeopath, acupuncturist, massage therapist or life coach. Discover how EFT gave a new lease of life to Mary-Jane’s practice and how her training can help you.


WORLD TAPPING SUMMIT
THIS EVENT HAS NOW ENDED (it runs every March), but you can access information and see video demonstrations on how to use EFT (Emotional Freedom Technique or ‘tapping’) for physical and emotional health at Tapping Solutions


Massage by Heather Wibbles
Heather’s YouTube channel. Learn how to use lymphatic drainage massage for self-help. Marvelous help for congestion from colds, blocked sinuses, for detox and health maintenance.


Niki Gratrix
CFS and abundant energy expert. Take the online questionnaire and discover your ACE score. ACE is the abbreviation for adverse childhood events. Groundbreaking research shows that the higher your ACE score, the greater your risk of developing chronic major diseases.


nurse-2020301_640

Norman Clinical Lab
Norman Clinical Laboratory, Inc. (NCL) provides a means to test individuals through the mail for cobalamin (vitamin B12 ) deficiency. (International shipping offered).
**The urinary MMA/creatinine ratio (uMMA) spot test is more accurate than the blood test as it indicates tissue/cellular B12 deficiency.


Medichecks – **discounts on thyroid tests and other hormone checks every Thursday for #ThyroidThursday. If you use our link we receive a little commission – thank you. 

The Medichecks service offers over 1200 blood, saliva, urine and stool laboratory tests, complete with easy-to-visualise results and comments from qualified doctors. The test can be used in the comfort of your home or your nearest phlebotomy service at a local hospital or clinic. Medichecks can advise you on the nearest local partner clinics. Alternatively, a nurse can be arranged to visit your home. Medichecks can be used for diagnosing a condition, checking your risk factors for disease that runs in the family or optimising your health regime. Their service is helpful for patients who are housebound or unable to manage the long waiting times at a GP surgery, are self-monitoring a health condition, or have been refused access to tests such as a full thyroid panel.

(**Note from webmaster: The standard TSH thyroid test is a not a reliable indicator of thyroid health, the Free T3 and T4 test plus antibodies and reverse T3 + ratio need to also be analysed. The DIO1 and DIO2 DNA test is also recommended to check for genetic mutations that can affect one’s ability to make thyroid hormones – please see our link for Regenerus Labs below.)


Regenerus Labs
World leading laboratories that deliver the broadest range of functional, nutritional, genetic, autoimmune for diagnostic and research testing services. No GP or practitioner referal required. Includes Lyme tests, DIO2 gene test, comprehensive gut tests often hard to find elsewhere. Allows you the freedom to work with a natural health practitioner or integrative doctor of your choice, if you need the results interpreted and private treatment.
**See listing below regarding finding an endocrinologist to discuss your results and access treatment (even if your TSH is classed as ‘normal’).


Thyroid UK
Thyroid patients should have the choice to be treated according to their individual needs. Thyroid UK is a world leader in patient care and resources. Check out their useful directory of private medical testing companies. You can arrange Genova Diagnostics private tests via Thyroid UK without a GP or health practitioner referal. (Can use for other hormone panels not just thyroid test panels. For example the Genova Rhythm Plus or salivary cortisol panels). Private Tests

(**Note from webmaster: Contact us for details of an endocrinologist in southern England that understands the DIO gene mutations and can prescribe T3, Natural Desiccated Thyroid and Low Dose Naltrexone with a private prescription.)


STOP THE THYROID MADNESS
Purchase books 1 and 2 at a discount from Wordery HERE
with free worldwide delivery.
RECOVERY WITH T3 by Paul Robinson 
Learn how to self-monitor your thyroid health and manage your T3 thyroid medication in this useful book and handbook.
Purchase from Wordery with free worldwide delivery HERE

stop-the-thyroid-madness-janie-a-bowthorpe-9780615477121recovering-with-t3-paul-robinson-9780957099340


Low Dose Naltrexone – how to get a prescription

LDN and LDXN is an off label/license treatment used for autoimmune disease such as MS, certain cancers and can be used for ME/CFS. It is generally only available privately. The online consultation costs £35 and is with a Medical Practitioner.

Find out more about Low Dose Naltrexone
Dickson Chemist stock LDN


Health Unlocked
The social network for health. Over 500 health communities. A caring place to ask your burning questions.


23andMe
Genetic health and ancestry testing using a home kit. For interpretation of your results afterward, we suggest using one of the many free or paid online services that offer ‘raw genetic data interpretation’
Purchase the saliva kit HERE


Mercola article on maximizing vitamin D exposure safely
Find out the precise dates and times that vitamin D can be absorbed naturally from the sun in your town. Particularly useful for Europeans. Use the US Naval Observatory Azimuth table


Baldwins
Herbal suppliers since 1844. Buy raw ingredients or pre-packaged medicines. It’s also a world-class store for customers who create their own medicines, soaps, beauty products, and candles. Find glass bottles and jars, empty capsules, unbleached empty teabags, moulds, base ingredients and unusual herbs that are hard to source elsewhere.


 FND Hope
Supportive resources for M.E. & Fibro patients also living with a functional neurological disorder.
St Georges Hospital, London is currently rolling out its specialist in-patient 3-5 day neuro physio program to other major hospitals in the UK.
**Contact us for the name of an NHS FND specialist in London and Scotland. 


 Queen Square Private Consulting Rooms
Private Neurology consultations for the full range of neurological conditions from MS to movement disorders, functional disorders, and migraines. You don’t always need a GP referral, it depends on the consultant. Located near the National Neurology Hospital London.


Upright MRI
Upright MRI scanner service in London, Leeds, and Birmingham, UK. Self-referrals accepted. Useful if unable to lie down or suffer from claustrophobia.
Note**Some NHS hospitals now offer scans using the open Oasis MRI scanners. In Health at Croydon Hospital is one example.


Physiospect Scan
Available in West Sussex UK. The device scans each organ or tissue on a cellular level. Useful for complex conditions and those that evade diagnosis or recovery. Can provide insights into imbalances/disease that could potentially develop in the future.


IS YOUR POO PERFECT?
Download the free Bristol Stool Chart from The Bladder and Bowel Community
BristolStoolChart

Stool chart from WIKIPEDIA
Urine chart from WIKIPEDIA

Check your level of hydration by comparing your urine colour. 

2601_Urine_Color_Chart


 

The Wim Hof Method
Click above to register for a 3 part mini-series to learn the basics of the 3 pillars of the Wim Hof Method.

Purchase the new book: Wim Hof Method: How Power Breathing Technique, Extreme Cold Therapy and Strong Commitment Can Make You Strong, Healthy, Happy and Change Your Life Forever.  HERE

download


NOI Group
Neuro Orthopaedic Institute (NOI) Australasia. Useful resources for brain retraining and pain management. Talks held worldwide. The biopsychosocial approach, or the merging of the biology of human pain, stress, and performance with the psychological and social environment, is the basis of the NOI educational philosophy. Their vision is to seed ‘healthy notions of self through neuroscience knowledge’ worldwide.

Visit their page on Graded Motor Imagery and learn brain retraining techniques for movement disorders and impaired motor skills, which can be an issue for a minority of CFS and fibro patients with neuro complications.
Download the Recognise app
Protectormeter
The Explain Pain Handbook brings the latest in pain science into an easily accessible book for patients and includes a groundbreaking pain treatment app – the ‘Protectometer’


Made By Hemp
CBD products –— Made by Hemp is dedicated to providing you with quality products and the education you need to make informed choices. We carefully select each of our products for their consistency and quality. Each product we receive is third-party lab tested to verify its cannabinoid potency, THC levels, and more before joining our ever-increasing list of effective CBD products.


Standing Up to Pots
Supporting research for postural orthostatic tachycardia syndrome (POTS) and implementing POTS-specific solutions, resources, information, and programs while also increasing awareness about the disorder. A wealth of resources for anyone living with a disability or chronic illness. POTS can also be a secondary or tertiary health condition for those managing ME/CFS, Fibromyalgia and adrenal fatigue.


 man-343674_640

BUSINESS, LEARNING & CREATIVITY

Carers UK Creative Writing Competition – This competition is held annually.


A Course in Business Miracles
Are you an HSE (Highly Sensitive Entrepreneur)? Take the quiz and receive your free report. Classes, webinars, courses, community and mentoring by World HSE expert Heather Dominick.


Praxis Centre for Aesthetic Studies
Online school run by Brainard Carey and designed to build artists careers. Examples of courses include: how to get exhibited at a gallery, applying for funding, patrons and sponsors, tax, selling online and how to write artist statements. Personal feedback on your website, social media, letters and communications, and more…


Conscious Crafties
Handmade craft online marketplace featuring the work and talents of disabled and chronically ill crafters.


Opulent Mobility
A ground-breaking project and collaborative effort to re-imagine mobility, disability and access. See the gallery of wheelchairs, walkers, prosthetic limbs, crutches and other assistive technology custom designed and personalized. Submit your art, make an exhibit.


Mondly
Play your way to learning a new language for FREE using the app.
Swipe and tap your way through 500 bite-size lessons that last just a few minutes (perfect for those with cog-fog). Plus conversational modules and an optional weekly quiz.


Accessible Arts Australia – Accessible Arts promotes and provides opportunities for people with disability to participate in arts and cultural activities either as audience members; through attending galleries, theatres, museums and festivals; or as participants in art, drama, music, dance and multimedia activities; and by developing as professional artists.


Disabled Entrepreneurs UK
UK Hub for disabled entrepreneurs. Download the free business guide.


Disability Grants
Directory and resources on grants and funding for those in the UK living with a disability.


Creative Future – We provide training, mentoring and the chance to publish or exhibit to talented people who lack opportunities due to mental health issues, disability, health, identity or other social circumstance.


Outside In – Providing a platform for UK visual artists who find it difficult to access the art world


Disability Arts Online – Sharing disability arts and culture with the world

laptop-2569306_640

Women with Disabilities Australia
Women with disabilities sharing experiences, to gain strength from one another and to work together on issues that affect them and to influence legislative, policy, and service development.


International Network of Women with Disabilities
Women sharing their knowledge, experience and creating a more just and fair world that acknowledges disability and gender, justice, and human rights


Disabled Womens Network Canada
DAWN Canada’s vision is to end the poverty, isolation, discrimination, and violence experienced by women with disabilities


 

 

Images: courtesy PixaBay